Parchment

College paper. Printed out.

My son wrote a very good, very smart paper.

It was all the more remarkable by the restraint. His argument was tight. His passion was clear. He made his points with clarity and only a hint of his impressive vocabulary that he wields as a poet.

And I couldn’t throw it out.

It was the print copy that I proofed for him. I was clearing the table for dinner, and had to move the pile of pages, unnumbered and with only a very few specs of my penciled carats in the margin. It interrupted the laying out of pork loin chops, Swiss chard and a very, very good warm potato salad with Dijon and capers.

And I couldn’t throw it out.

As if it was an original. Irreplaceable.

I know that the bits and bytes, the zeroes and ones, the binary form of this paper that are these smart words are in the computer. I know they are also accessible via The Cloud. And they can be reproduced easily via .

And, still, I couldn’t throw away these sheets that made the words real. Because if they are not held in my hand, can the thoughts disappear? Forever? Unretrievable?

I can’t throw it away. I want it.  For real.

Mother’s Day Anew

Estee Lauder Modern Muse gift with purchase

I got one of those gifts with purchase. That special bag filled with makeup goodies from the department store that makes you feel like you got something all the while pretending you didn’t get taken by them because you spent $17 on mascara and had to find something else to bring you up to the minimum purchase requirement. As an aside, the good news is, when you get old and are trying to hold visible age at bay, the products are much more expensive so you only need to buy one item. And you feel like you BETTER get something with that purchase.

The bag is pretty and a good size. The lipstick is in a shade I can wear (the only thing slightly worse than getting a shade that is hideous is getting a perfect shade that becomes your favorite and when you run out you don’t want to spend $22 on a tube of lipstick that they gave you for free). The eyeshadow kit is always the most fun. I play with the different combos of colors. I do one eye using a light hand and then do the other eye super dramatic. Then I usually wash it off and put the kit away and later wonder why I have so much junk.

I put the bag, eyeshadow, lipstick, cleanser and moisturizer in the bathroom. It will be out on the counter for a few weeks and then I’ll hide it.

I was clearing off the table to set it for dinner and found the fragrance that came in the kit. I didn’t put it in the bag. I’m weird about scent. I’ve been wearing the same fragrance for pretty much my entire adult life. And when I tried other perfumes, I’d go mad smelling myself all day. So back to the familiar.

I picked up the pretty, miniature bottle and thought that I’d bring it to my mother. I have been bringing her these “foo-foo” samples–especially on her too many trips to the hospital or rehab. Fancy eau de toilette is always a lift and a laugh.

As I fingered the bottle and briefly traversed that thought, I remembered that Mom is gone. Just like that. Boom. Jarred into reality.

I heard an ad on the radio about getting a gift for Mothers’ Day, and felt another tug. I don’t have a mom to give anything to anymore. Not since January.

Ugh. Ugh. Ugh. I didn’t know Mothers’ Day was a holiday of pain. I guess that’s what happens. Crappy circle of life.

And Happy Mothers’ day, Mom. Miss you.

Adieu 2014

adieu: old french TO GOD

It’s the end of the year, and many have told me to quickly close the door on 2014.

But this has been an extraordinary year. One that is a marker for me. Not because I had a ton of punches on my healthcare loyalty card.

No, extraordinary because I spent a little time in the darkest space I’ve ever been, and a lot of time squinting in the absurd brightness of the lightest spaces.

I dodged the bullets–not through anything but serendipity.

I know that I am lucky, fortunate, blessed, charmed, or whatever you call what happens when you are right on the edge of everything going to hell but then it turns out okay.

I know that it’s not because I am good or that I am bad or that God is taking care of me or that God is rejecting me. I don’t think that you only get what you can handle or that there is a greater purpose.

I also know that I am not in control of what I am dealt. Last, I do know that “it is what it is.” And acknowledging that helps me to mine my experiences for lessons (maybe that is “purpose?”).

Major lessons? The only thing that I can control is how I process and react. The fountain of kindness of my family, friends, neighbors and colleagues is infinite. Asking for and accepting help is more than necessary, it makes me both more humble and more human. Yes, giving is important, but so is being receptive. I learned the real reason why people pray–sometimes it’s the only thing you can do. And, you can’t go wrong if you do things out of love. It won’t guarantee you are right, but motives frame impact.

You know how at the end of the book, the character collapses after bruising battles and wakes up days later asking “how long have I been asleep?” This end of the year has been like that, but without the sleeping part.

Yeah, this has been a bruising year. But it is a year that has been full of amazing–and maybe some unspeakable–lessons.

I am not sorry to see the year end. So, I send you, my friend 2014, with fondness to God. Adieu, 2014.

Annonymous

Such a cute mottled working dog.
Cute on the dog, dumb on the girl.

My eyelashes are filling back in. I never lost them all. There were a few that stubbornly stood by and supported me as I vainly (both in conceit and in futility) worked the mascara wand. Now those soldiers have fresh recruits.

I ran in the local market because I needed peppercorns for a recipe and saw a friend picking up a last minute corn-bread mix. She said she didn’t recognize me in my red-head hat, which I pulled off showing my ‘do to her widening-eyes. She remembers me with long blonde locks.

My hair is coming in, too. It’s thick and soft like moss, and dark and light in patches that look really cool close-cropped but may make me look like a crazed Australian shepherd as it grows out.

A colleague walked by me without recognition–three times. Even after I tapped his arm.

I am seeing the world the same as it ever was, but others are not seeing me in the same world.

Am I moving on too fast? Are the people around me trying to tell me something? Am I missing some important meaning?

My hair is showing itself to be curly–and unruly at that. I see some of it sticking up and out. I don’t think that I have any product that can tame it.

Spring has finally broken through. After three miserable weeks of Sunday-Monday snow in a row, it looks like the bad weather is behind us. Today was glorious. Stuff all a-bloom, the sunshine warm and welcome. I decided to go to the driving range rather than watch golf on TV.

ugly golf shoes, crazy shadow and 9 iron

I had a new obnoxiously aqua/turquoise golf-skirt to wear with my bright lime shirt and joker shoes to satisfy my personal rule that golf clothes must be ugly. I went to my urban golf hideout with my 9-iron.

I’m always a lousy golfer, but I wasn’t even sure that I could swing my club. I got a little bucket of balls.

I stood on my little square of green carpet. It was crowded so I had to take the stall without a tee. That seemed good. Less pressure. I just had the one club with me, and I took it in two hands and stretched it over my head and behind my back. Rolled a ball onto my plot and set my feet. Placed the club across my left palm and met it with my right hand. Looked at that white dimpled ball and wondered if everyone was looking at me.

Seriously. I did. Like everyone knew my secret–as if I had a secret.

Why would anyone look? They had their own balls to hit. Their own grips to adjust. Their own club to blame for that slice. What was curbing me?

I thought the strangers could see me and knew that this was my first swing since my treatment.

But they weren’t looking. They didn’t see me either, but they didn’t know who I was before.

People ask me what I am going to do with my hair. Keep it short? Grow it out? I don’t know. I don’t know what it will be like. I don’t need to decide today.

I do know that I am grateful that it is coming back. And for alot of other things, too.

Hating Waiting

my wedding and engagement rings

A friend asked me if I saw things differently since I found out that I had stupid cancer. I said that it doesn’t make sense to wait. Do things now. Remodel the kitchen? Cool trip? Just do it. My friend called it the tyranny of now.

But that really isn’t true. I’ve been waiting.

Time is suspended during treatment. There’s a treatment plan, but you have to wait to see if it’s working. You need to see if it knocks you out. Or not.

Do I start something that I might not be able to finish? Do I end up either having to push too much–setting myself back–or throw in the towel because I can’t do something?

So, I kind of hang back. Suspended in time. Waiting for this to be done.

I’m not tyrannized by any “now.” My tyranny is this stupid illness. It’s stopping me. But, I always knew there was an end, and, right now, I think I can see it.

One of the first parts of my treatment was to have the stupid tumor tattooed. I had to go to the hospital and have it done under general anesthesia.

When you go under general you can’t wear makeup or nail polish. And you can’t wear any jewelry. Not earrings. And not rings. Not a wedding ring.

My wedding ring is a small, simple gold band. I never took it off. And it was very comfortable on my finger. Very comfortable–in like it didn’t want to come off. The pre-op nurse and I bonded over the fight we had getting the ring off my finger. After we wrestled it off, she put it in a small bag. It was marked bio-hazard. She handed it to my spouse for safekeeping.

The next part of my treatment was the chemo, but I knew that surgery would follow. Since I had such grief getting the ring off, I decided to wait to put it back on until I was done.

A few weeks ago I had surgery to remove the tumor. Tomorrow I have another surgery to remove some lymph nodes. Then this stupid cancer should be gone.

I am bringing my wedding ring to the hospital. And I am putting it back on. Then I will be done waiting.

Real or Not?

stylyized view of EEOB from the former Caribou Coffee on 17+Penn

Today I am thinking about denial. Or maybe disbelief. Tomorrow I am having my surgery, and, for the life of me, I don’t know why.

I mean, of course I know why. There’s this cancer thing in my mouth. And the surgeon is going to cut it out. But I don’t really believe that I have cancer.

I’ve been through three rounds of chemotherapy. And I lost most of my hair. (Thank God I kept my brows and lashes.) But I kind of feel like I am in a cancer daze.

Like why do I have cancer? Okay, why questions are always stupid.

How come I don’t feel like I have cancer? Shoot, what does feeling cancer feel like?

The surgery should be the end of my cancer. I guess I’ll have to be monitored for the rest of my life. Even when this cancer is a distant memory–like my broken ankle that I can’t even remember how long ago–six years? Seven?–it will follow me.

So tomorrow I go to the hospital at 8 am. Surgery scheduled for 10 am. Should be done in about 4 hours. 3-7 days in the hospital. Then 6-8 weeks of recovery. A timeline makes it more real. There is something to do.

I don’t really believe that I have cancer, but I’m going to do the stuff as if I do.

Wish me luck.

Bang a Gong

big ole gong

There is ritual at the chemo bar. Like any neighborhood joint.

You heard about the place. It has it’s own je ne sais quoi. The first time you walk in there are a bunch of regulars. You think they are looking at you, especially since you are obviously–in your mind–new. Do you go up to the bar? Sit down? It’s not a really big deal, but you hesitate.

Then someone always takes care of you, and you get an idea of the rhythm.

No idiots. No bombs. No shooters. No specials. No politics.
Relax. Drink. Be cool. Behave.

My chemo bar is full of alot of regulars, but the bartenders nurses do their best to make you at home.

There is never any rush at the chemo bar. You choose your seat and someone brings your specialty mix. People are lined up around the perimeter in their heated chairs, some with companions, some alone. Some come in to get a shots or advice. Those are the seats away from the windows.

At first, it seems like a melancholy joint. There’s sick people getting sicker to get better. (Yes, chemo is like being hit by a truck.) And while this is an exclusive guest list, nobody wanted to be waived in.

You wonder if you’re supposed to make eye contact? Nod? So you try it. You start to recognize other folks who recognize you. People nod back. Some smile. You see how the bartenders nurses not only support the patients, but each other. Folks cut up. A little. Okay, some folks cut up.

When you have your last chemo infusion at my chemo bar you can bang the gong. I have seen it done. There is a sense of #winning when someone who has been through grueling treatment is done. Some people are there every week for a few months. Many of them following surgery and maybe radiation.

My last of three chemo treatments was Monday. My former Vegas EMT and current biker chick bartender nurse said I could bang the gong. But I have surgery next. I am not done yet. I didn’t want to make the gods angry by taking an early victory lap.

But, I am glad to have the infusions behind me. I’ll be back for bloodwork for the next few weeks. But under my breath so as not to offend the powers, I will be singing this, since it somehow makes sense.

Well you’re dirty and sweet, clad in black
Don’t look back and I love you
You’re dirty and sweet, oh yeah
Well you’re slim and you’re weak
You’ve got the teeth of a hydra upon you
You’re dirty sweet and you’re my girl.

Yeah. Teeth of a hydra. Bring it on. Bang a gong.

Almost Cut My Hair

A comb with a bunch of blond hairs. That used to be in my head.

I washed my hairs today.

Normally, I wash my hair. But I don’t have enough left to call it hair. Hair is a bunch of hair. Hair is a pony tail. Hair can be braided. Hair whips around your face when the windows are down in the car in the summertime.

Hair takes in and gives off the smell of shampoo, of a campfire, of the scent of your partner.

Hair is something you flip when you have an attitude. When you dismiss someone. Or when you’re flirting.

Hair is something I play with when I’m thinking. I tuck it behind my ears. I brush it away from my face. Not so much twirling it, but placing it. I’ve seen this annoyance on video. I bet the experts would tell me to stop.

Hairs is all I have left. The hair came out in huge swaths. It seems that everything in the house now has a clump of golden locks on it. It’s tiresome.

But it’s my mane. Was my mane. Is now in the trash.

Time for a clean sweep and a new beginning. I will miss my hair, but not so much my hairs.

Anna Karenina and Cancer

f*ck stupid cancer right in it's stupid cancer face

Reading Michael Gerson’s account of his, thankfully, successful encounter with cancer, I found myself bastardizing Tolstoy; that folks without cancer are all alike, but those of us with cancer face it in our own ways [sorry Leo].

I bet, though, that everyone who gets a cancer diagnosis does entertain thoughts about mortality. But what does that mean? I don’t know, but Gerson leads me to explore what I was thinking.

First off, there is something wrong and you go through what that might be. Me, I’m healthy as a horse. I just easily and smartly dumped a (metaphorical) ton of weight and all was well on the home and professional fronts.

I figure that the pain in my mouth is likely due to the fact that I am that person who hates going to the dentist to admit that I am a lousy dental flosser. My punishment is some popcorn kernel stuck in my gum. Maybe I’ll need a root canal. Ugh.

I studiously cause much gum bleeding with my newfound flossing fervor. But the pain is up toward my ear. Good job on the flossing, but it seems to be something else.

Yikes. I get it now. It is a stupid sinus infection. Headache. Earache. Pressure under my cheekbones. This I can deal with. A call to urgent care. A ‘script for amoxicillin. Plenty of liquids. Been there and done that.

The pressure relieves as the ten-day of antibiotic regimen winds down. I finally recognize that I have been having pain when I eat, mostly when I swallow. This is a new finding. And I also recognize that the pain is increasing in frequency and severity. Not frequent and severe, but a definite upward trend.

So, as a star troubleshooter, I spend time chewing on one side of my mouth and then the other. Nope, chewing is not the problem. So it’s my throat. But it only hurts when I swallow sometimes. Sipping wine? No problem. Gulping water? Fail.  I further localize it to the right back side of my mouth, base of my tongue.

I bet you never thought about your tongue as a big muscle. When you eat like a pig and bite off alot, your tongue moves the food around in your mouth so you can grind and pulverize it enough so you don’t choke when you swallow.

I find myself eating daintier bites to avoid pain. I eat more slowly. I begin to prepare myself mentally for each meal. I pull out the calendar to try and figure out how long this has been going on. I can’t exactly pinpoint it, but it wasn’t an issue on vacation. So let’s say it started in mid-August. I get my antibiotics at the end of September. Twelve days later I call for a follow-up.

Making the appointment they tell me that I can see my doctor some time in the future, but I can see the resident in 3 days. I jump on it. I know that I will need some kind of additional diagnostics, so the sooner I get on the medical referral train, the better.

And, for the first time I admit to myself that this is something. I recognize the somethingness as I’m making my notes for my appointment. I mentally mark my dear friend Kris who was put off by her doctor more than once. Her advanced colon cancer took her away from us too soon. I’m thinking that I am NOT going to let them put me off. And, I realize that I am thinking that this might be, you know, uhm. Okay, deep breath and think it for real. Maybe it’s cancer.

Off to the Google. Is mouth cancer a thing? Yup. Oh, and that Beastie Boy guy had salivary gland cancer, and it killed him. Step away from the Google. Wait to see the doc.

I am now taking four Advil every 4 hours for the pain. I decide to go to the doc without pain numbness to help them diagnose me. I know that the resident will bring in the attending. She does. They see that it hurts. That the recent antibiotic course rules out an infection. They palpitate around my throat. They use the word mass. Order at CT scan. And tell me to make an appointment with the ENT as soon as the test is done.

Mass. That’s a cancer kind of word. I walk across the street and sit at one of the tables in front of the Whole Paycheck. I’m a little rattled, but get on the phone to get the scan scheduled. Turns out that it’s considered two tests, neck and head. So they need to find me two slots. Have to wait three weeks. Can call back to see if there are earlier openings. Make the appointment with ENT for the day after the scheduled scan.

I go back to the cancer site. I tell my spouse there is a mass. He knows but doesn’t say it.

I can’t take the Advil because of the scan. I can’t take enough Tylenol to kill the pain and maintain kidney health. Move up the chain to Tylenol-3. Have the scan. See the doc.

It’s a few weeks later and my mouth is really sore. Painful. I eat a little bit at a time. It’s too much work to eat. The exam is very painful. The doc is very apologetic.

And then he says that it’s cancer. And that he thinks I knew. And I did.

More flurry of appointments to verify what we know. But he’s confident that I’ll be cured. Phew.

I don’t know why I cry. It is just a little squall. Over while he left and came back to the room.

I don’t know why I cry. The doc was right. I did know it. I cry a little more in the car. Then I take a deep breath. I remind myself that I am not going to die. At least not right now.

I take another breath and start to prepare. Need to tell my husband. Need to tell the Big Guy. And likely Skype the Little Guy who goes to school in the Rockies.

I’m getting treatment now. Have a second round of menacing poisons that attack my fastest growing cells on Monday.

I read Gerson’s post again. He talks about cancer as a metaphor for our mortality. Maybe later I will know why I cried. For me, at least right now, it’s just stupid.

First Tattoo

big mean-ass dragon

My dad had tattoos. He served in the Navy, part of the Greatest Generation. He had an anchor on one bicep. A battleship on the other forearm. And above the battleship, a young woman with curly hair wearing a crackerjack hat with a few of his ports of call underneath her smile. We always said she was Mom.

My sibs got tattoos at different times. My one sib originally had a little unicorn with a rainbow and a kitty-cat with her little paw in the air. Not my style. When Dad died, she had an anchor tattooed on her ankle.

My other sib is a musician and had an eighth note with a rose tattooed on her chest. She got an anchor, too.

I always wanted a tattoo of a menacing dragon. One that I would wear over my back and shoulder with the tail just curling over the top of my arm. If I wore a tank top, you would see the tail and wonder what the whip was attached to.

But I never got the tattoo. The colors would fade, and my imagination had vibrant colors. Worse, as I aged, it would sag. And anyway, it’d probably hurt.

Yesterday I had my mouth tattooed so they can track the size of the tumor in there. In my head, it looks like a dragon. And it will kick evil’s ass.