Real or Not?

stylyized view of EEOB from the former Caribou Coffee on 17+Penn

Today I am thinking about denial. Or maybe disbelief. Tomorrow I am having my surgery, and, for the life of me, I don’t know why.

I mean, of course I know why. There’s this cancer thing in my mouth. And the surgeon is going to cut it out. But I don’t really believe that I have cancer.

I’ve been through three rounds of chemotherapy. And I lost most of my hair. (Thank God I kept my brows and lashes.) But I kind of feel like I am in a cancer daze.

Like why do I have cancer? Okay, why questions are always stupid.

How come I don’t feel like I have cancer? Shoot, what does feeling cancer feel like?

The surgery should be the end of my cancer. I guess I’ll have to be monitored for the rest of my life. Even when this cancer is a distant memory–like my broken ankle that I can’t even remember how long ago–six years? Seven?–it will follow me.

So tomorrow I go to the hospital at 8 am. Surgery scheduled for 10 am. Should be done in about 4 hours. 3-7 days in the hospital. Then 6-8 weeks of recovery. A timeline makes it more real. There is something to do.

I don’t really believe that I have cancer, but I’m going to do the stuff as if I do.

Wish me luck.

Bang a Gong

big ole gong

There is ritual at the chemo bar. Like any neighborhood joint.

You heard about the place. It has it’s own je ne sais quoi. The first time you walk in there are a bunch of regulars. You think they are looking at you, especially since you are obviously–in your mind–new. Do you go up to the bar? Sit down? It’s not a really big deal, but you hesitate.

Then someone always takes care of you, and you get an idea of the rhythm.

No idiots. No bombs. No shooters. No specials. No politics.
Relax. Drink. Be cool. Behave.

My chemo bar is full of alot of regulars, but the bartenders nurses do their best to make you at home.

There is never any rush at the chemo bar. You choose your seat and someone brings your specialty mix. People are lined up around the perimeter in their heated chairs, some with companions, some alone. Some come in to get a shots or advice. Those are the seats away from the windows.

At first, it seems like a melancholy joint. There’s sick people getting sicker to get better. (Yes, chemo is like being hit by a truck.) And while this is an exclusive guest list, nobody wanted to be waived in.

You wonder if you’re supposed to make eye contact? Nod? So you try it. You start to recognize other folks who recognize you. People nod back. Some smile. You see how the bartenders nurses not only support the patients, but each other. Folks cut up. A little. Okay, some folks cut up.

When you have your last chemo infusion at my chemo bar you can bang the gong. I have seen it done. There is a sense of #winning when someone who has been through grueling treatment is done. Some people are there every week for a few months. Many of them following surgery and maybe radiation.

My last of three chemo treatments was Monday. My former Vegas EMT and current biker chick bartender nurse said I could bang the gong. But I have surgery next. I am not done yet. I didn’t want to make the gods angry by taking an early victory lap.

But, I am glad to have the infusions behind me. I’ll be back for bloodwork for the next few weeks. But under my breath so as not to offend the powers, I will be singing this, since it somehow makes sense.

Well you’re dirty and sweet, clad in black
Don’t look back and I love you
You’re dirty and sweet, oh yeah
Well you’re slim and you’re weak
You’ve got the teeth of a hydra upon you
You’re dirty sweet and you’re my girl.

https://youtube.com/watch?v=TVEhDrJzM8E%3Frel%3D0

Yeah. Teeth of a hydra. Bring it on. Bang a gong.

Almost Cut My Hair

A comb with a bunch of blond hairs. That used to be in my head.

I washed my hairs today.

Normally, I wash my hair. But I don’t have enough left to call it hair. Hair is a bunch of hair. Hair is a pony tail. Hair can be braided. Hair whips around your face when the windows are down in the car in the summertime.

Hair takes in and gives off the smell of shampoo, of a campfire, of the scent of your partner.

Hair is something you flip when you have an attitude. When you dismiss someone. Or when you’re flirting.

Hair is something I play with when I’m thinking. I tuck it behind my ears. I brush it away from my face. Not so much twirling it, but placing it. I’ve seen this annoyance on video. I bet the experts would tell me to stop.

Hairs is all I have left. The hair came out in huge swaths. It seems that everything in the house now has a clump of golden locks on it. It’s tiresome.

But it’s my mane. Was my mane. Is now in the trash.

Time for a clean sweep and a new beginning. I will miss my hair, but not so much my hairs.

Anna Karenina and Cancer

f*ck stupid cancer right in it's stupid cancer face

Reading Michael Gerson’s account of his, thankfully, successful encounter with cancer, I found myself bastardizing Tolstoy; that folks without cancer are all alike, but those of us with cancer face it in our own ways [sorry Leo].

I bet, though, that everyone who gets a cancer diagnosis does entertain thoughts about mortality. But what does that mean? I don’t know, but Gerson leads me to explore what I was thinking.

First off, there is something wrong and you go through what that might be. Me, I’m healthy as a horse. I just easily and smartly dumped a (metaphorical) ton of weight and all was well on the home and professional fronts.

I figure that the pain in my mouth is likely due to the fact that I am that person who hates going to the dentist to admit that I am a lousy dental flosser. My punishment is some popcorn kernel stuck in my gum. Maybe I’ll need a root canal. Ugh.

I studiously cause much gum bleeding with my newfound flossing fervor. But the pain is up toward my ear. Good job on the flossing, but it seems to be something else.

Yikes. I get it now. It is a stupid sinus infection. Headache. Earache. Pressure under my cheekbones. This I can deal with. A call to urgent care. A ‘script for amoxicillin. Plenty of liquids. Been there and done that.

The pressure relieves as the ten-day of antibiotic regimen winds down. I finally recognize that I have been having pain when I eat, mostly when I swallow. This is a new finding. And I also recognize that the pain is increasing in frequency and severity. Not frequent and severe, but a definite upward trend.

So, as a star troubleshooter, I spend time chewing on one side of my mouth and then the other. Nope, chewing is not the problem. So it’s my throat. But it only hurts when I swallow sometimes. Sipping wine? No problem. Gulping water? Fail.  I further localize it to the right back side of my mouth, base of my tongue.

I bet you never thought about your tongue as a big muscle. When you eat like a pig and bite off alot, your tongue moves the food around in your mouth so you can grind and pulverize it enough so you don’t choke when you swallow.

I find myself eating daintier bites to avoid pain. I eat more slowly. I begin to prepare myself mentally for each meal. I pull out the calendar to try and figure out how long this has been going on. I can’t exactly pinpoint it, but it wasn’t an issue on vacation. So let’s say it started in mid-August. I get my antibiotics at the end of September. Twelve days later I call for a follow-up.

Making the appointment they tell me that I can see my doctor some time in the future, but I can see the resident in 3 days. I jump on it. I know that I will need some kind of additional diagnostics, so the sooner I get on the medical referral train, the better.

And, for the first time I admit to myself that this is something. I recognize the somethingness as I’m making my notes for my appointment. I mentally mark my dear friend Kris who was put off by her doctor more than once. Her advanced colon cancer took her away from us too soon. I’m thinking that I am NOT going to let them put me off. And, I realize that I am thinking that this might be, you know, uhm. Okay, deep breath and think it for real. Maybe it’s cancer.

Off to the Google. Is mouth cancer a thing? Yup. Oh, and that Beastie Boy guy had salivary gland cancer, and it killed him. Step away from the Google. Wait to see the doc.

I am now taking four Advil every 4 hours for the pain. I decide to go to the doc without pain numbness to help them diagnose me. I know that the resident will bring in the attending. She does. They see that it hurts. That the recent antibiotic course rules out an infection. They palpitate around my throat. They use the word mass. Order at CT scan. And tell me to make an appointment with the ENT as soon as the test is done.

Mass. That’s a cancer kind of word. I walk across the street and sit at one of the tables in front of the Whole Paycheck. I’m a little rattled, but get on the phone to get the scan scheduled. Turns out that it’s considered two tests, neck and head. So they need to find me two slots. Have to wait three weeks. Can call back to see if there are earlier openings. Make the appointment with ENT for the day after the scheduled scan.

I go back to the cancer site. I tell my spouse there is a mass. He knows but doesn’t say it.

I can’t take the Advil because of the scan. I can’t take enough Tylenol to kill the pain and maintain kidney health. Move up the chain to Tylenol-3. Have the scan. See the doc.

It’s a few weeks later and my mouth is really sore. Painful. I eat a little bit at a time. It’s too much work to eat. The exam is very painful. The doc is very apologetic.

And then he says that it’s cancer. And that he thinks I knew. And I did.

More flurry of appointments to verify what we know. But he’s confident that I’ll be cured. Phew.

I don’t know why I cry. It is just a little squall. Over while he left and came back to the room.

I don’t know why I cry. The doc was right. I did know it. I cry a little more in the car. Then I take a deep breath. I remind myself that I am not going to die. At least not right now.

I take another breath and start to prepare. Need to tell my husband. Need to tell the Big Guy. And likely Skype the Little Guy who goes to school in the Rockies.

I’m getting treatment now. Have a second round of menacing poisons that attack my fastest growing cells on Monday.

I read Gerson’s post again. He talks about cancer as a metaphor for our mortality. Maybe later I will know why I cried. For me, at least right now, it’s just stupid.

First Tattoo

big mean-ass dragon

My dad had tattoos. He served in the Navy, part of the Greatest Generation. He had an anchor on one bicep. A battleship on the other forearm. And above the battleship, a young woman with curly hair wearing a crackerjack hat with a few of his ports of call underneath her smile. We always said she was Mom.

My sibs got tattoos at different times. My one sib originally had a little unicorn with a rainbow and a kitty-cat with her little paw in the air. Not my style. When Dad died, she had an anchor tattooed on her ankle.

My other sib is a musician and had an eighth note with a rose tattooed on her chest. She got an anchor, too.

I always wanted a tattoo of a menacing dragon. One that I would wear over my back and shoulder with the tail just curling over the top of my arm. If I wore a tank top, you would see the tail and wonder what the whip was attached to.

But I never got the tattoo. The colors would fade, and my imagination had vibrant colors. Worse, as I aged, it would sag. And anyway, it’d probably hurt.

Yesterday I had my mouth tattooed so they can track the size of the tumor in there. In my head, it looks like a dragon. And it will kick evil’s ass.

Tub Thumping

“Well Doc, I think this is it.”

So said my Loyal Reader, reduced to maybe 80 pounds, her hands looking more like a bird’s foot than the hand that held a champagne glass. Her breathing supported by both a tube to her nose and a mask over her mouth wasn’t labored, and she apologized for the getup being awkward.

Her blue eyes were ringed indigo and bored straight into mine. “I am glad you came. I wanted to say goodbye.”

My Spouse–away in NYC–had called the night before, telling me that she only had a few days left. I felt like I was hit in the stomach. It was dumb to be shocked–she had stage iv colon cancer, prognosis is lousy.

Except she had me totally fooled. She had me convinced that she was going to kick this cancer-thing. Even after she lost the month of August when she was sedated and intubated–she was mad that it took her so long to regain the strength and to relearn to walk. She had been back and forth with chemo and radiation and surgery for two years. She decided that she was going to do whatever she could to get better, and it was working.

I walked in to her postage stamp sized room and saw her kids and husband crowded inside were wearing yellow hospital garb. I retreated as instructed and donned the disposable gown. I clumsily kissed her cheek, then her hand, and then her husband who looked so so so sad. I was thinking about pork roasts at her house and burnt ribs and blue martinis at my house. And my crewe, who earned the reputation of always leaving their house as the last guests, very late.

And then the times when she would tell me to be less cynical (Doc, think!), tell me that the Republicans didn’t have it all wrong (she worked for the RNC as a designer–not a believer–long before my foray into a Republican administration), and, most importantly, remind me that when my kids were in trouble that my job was to love them.

She was a good role model. She loved her kids–they had the best birthday parties and halloween costumes. She nurtured their creativity and embraced each of them for who they are. She raised three of the best people I know.

She was my most normal friend–not a D.C. type who was driven in that Washington kind of way. She would sit with me and drink beers at Redskins games while we chattered through 4 quarters of football. What was that score? She would tell me that I did something stupid, or ask me “Why?” when nobody else would.

I am glad that I told her that I love her every time I saw her. I am glad that I told her I love her last week. And I am so glad, and so fortunate, that she loved me.

She asked that we celebrate her life and have a party. I miss her.

Kris, this is for you,

42

This, of course, is the answer to the question of the universe. It is also the number of posts that I have. Hmmmm, makes you wanna think, no?

The issue, as you may recall, with the answer is that nobody knew the question. Kind of like a game of Jeopardy on steroids. Makes you think that you should be thinking about the question–or at least thinkin’ about somethin’.

Today I was thinking about cancer. We have it on both sides. My 85-year-old Dad was diagnosed with lung cancer this summer. Two weeks ago, his surgeon told him, “John, you are going to die from something, but it won’t be lung cancer.” Dad was blowing the weeds out of his suburban front yard last Friday.

My mother-in-law has advanced colon cancer. She is only 75–everything is relative. She had her info delivered before last Thanksgiving and had surgery followed by chemo. She has been doing miraculously well. She is feeling less better now, though.

A tale of two cancers, of two parents, of two families. My first thought about my Dad wasn’t a thought but a prayer. A prayer that he wouldn’t suffer. My mother-in-law moved in with us for her treatment, and we supplied the chocolate treatment, which was key to her good health.

I hate cancer. It is not a just master. It makes you think that you are in control of your emotions. You aren’t. It tricks you. You mourn when your beloved is told. And you think you have made peace with it. You find yourself lulled into a hopeful state when beloved does well. Then you mourn if beloved takes a turn. You think, again, that you have your feelings in check. You don’t. You can’t.

What was that question again?