Real or Not?

stylyized view of EEOB from the former Caribou Coffee on 17+Penn

Today I am thinking about denial. Or maybe disbelief. Tomorrow I am having my surgery, and, for the life of me, I don’t know why.

I mean, of course I know why. There’s this cancer thing in my mouth. And the surgeon is going to cut it out. But I don’t really believe that I have cancer.

I’ve been through three rounds of chemotherapy. And I lost most of my hair. (Thank God I kept my brows and lashes.) But I kind of feel like I am in a cancer daze.

Like why do I have cancer? Okay, why questions are always stupid.

How come I don’t feel like I have cancer? Shoot, what does feeling cancer feel like?

The surgery should be the end of my cancer. I guess I’ll have to be monitored for the rest of my life. Even when this cancer is a distant memory–like my broken ankle that I can’t even remember how long ago–six years? Seven?–it will follow me.

So tomorrow I go to the hospital at 8 am. Surgery scheduled for 10 am. Should be done in about 4 hours. 3-7 days in the hospital. Then 6-8 weeks of recovery. A timeline makes it more real. There is something to do.

I don’t really believe that I have cancer, but I’m going to do the stuff as if I do.

Wish me luck.

Bang a Gong

big ole gong

There is ritual at the chemo bar. Like any neighborhood joint.

You heard about the place. It has it’s own je ne sais quoi. The first time you walk in there are a bunch of regulars. You think they are looking at you, especially since you are obviously–in your mind–new. Do you go up to the bar? Sit down? It’s not a really big deal, but you hesitate.

Then someone always takes care of you, and you get an idea of the rhythm.

No idiots. No bombs. No shooters. No specials. No politics.
Relax. Drink. Be cool. Behave.

My chemo bar is full of alot of regulars, but the bartenders nurses do their best to make you at home.

There is never any rush at the chemo bar. You choose your seat and someone brings your specialty mix. People are lined up around the perimeter in their heated chairs, some with companions, some alone. Some come in to get a shots or advice. Those are the seats away from the windows.

At first, it seems like a melancholy joint. There’s sick people getting sicker to get better. (Yes, chemo is like being hit by a truck.) And while this is an exclusive guest list, nobody wanted to be waived in.

You wonder if you’re supposed to make eye contact? Nod? So you try it. You start to recognize other folks who recognize you. People nod back. Some smile. You see how the bartenders nurses not only support the patients, but each other. Folks cut up. A little. Okay, some folks cut up.

When you have your last chemo infusion at my chemo bar you can bang the gong. I have seen it done. There is a sense of #winning when someone who has been through grueling treatment is done. Some people are there every week for a few months. Many of them following surgery and maybe radiation.

My last of three chemo treatments was Monday. My former Vegas EMT and current biker chick bartender nurse said I could bang the gong. But I have surgery next. I am not done yet. I didn’t want to make the gods angry by taking an early victory lap.

But, I am glad to have the infusions behind me. I’ll be back for bloodwork for the next few weeks. But under my breath so as not to offend the powers, I will be singing this, since it somehow makes sense.

Well you’re dirty and sweet, clad in black
Don’t look back and I love you
You’re dirty and sweet, oh yeah
Well you’re slim and you’re weak
You’ve got the teeth of a hydra upon you
You’re dirty sweet and you’re my girl.

Yeah. Teeth of a hydra. Bring it on. Bang a gong.

Almost Cut My Hair

A comb with a bunch of blond hairs. That used to be in my head.

I washed my hairs today.

Normally, I wash my hair. But I don’t have enough left to call it hair. Hair is a bunch of hair. Hair is a pony tail. Hair can be braided. Hair whips around your face when the windows are down in the car in the summertime.

Hair takes in and gives off the smell of shampoo, of a campfire, of the scent of your partner.

Hair is something you flip when you have an attitude. When you dismiss someone. Or when you’re flirting.

Hair is something I play with when I’m thinking. I tuck it behind my ears. I brush it away from my face. Not so much twirling it, but placing it. I’ve seen this annoyance on video. I bet the experts would tell me to stop.

Hairs is all I have left. The hair came out in huge swaths. It seems that everything in the house now has a clump of golden locks on it. It’s tiresome.

But it’s my mane. Was my mane. Is now in the trash.

Time for a clean sweep and a new beginning. I will miss my hair, but not so much my hairs.

Anna Karenina and Cancer

f*ck stupid cancer right in it's stupid cancer face

Reading Michael Gerson’s account of his, thankfully, successful encounter with cancer, I found myself bastardizing Tolstoy; that folks without cancer are all alike, but those of us with cancer face it in our own ways [sorry Leo].

I bet, though, that everyone who gets a cancer diagnosis does entertain thoughts about mortality. But what does that mean? I don’t know, but Gerson leads me to explore what I was thinking.

First off, there is something wrong and you go through what that might be. Me, I’m healthy as a horse. I just easily and smartly dumped a (metaphorical) ton of weight and all was well on the home and professional fronts.

I figure that the pain in my mouth is likely due to the fact that I am that person who hates going to the dentist to admit that I am a lousy dental flosser. My punishment is some popcorn kernel stuck in my gum. Maybe I’ll need a root canal. Ugh.

I studiously cause much gum bleeding with my newfound flossing fervor. But the pain is up toward my ear. Good job on the flossing, but it seems to be something else.

Yikes. I get it now. It is a stupid sinus infection. Headache. Earache. Pressure under my cheekbones. This I can deal with. A call to urgent care. A ‘script for amoxicillin. Plenty of liquids. Been there and done that.

The pressure relieves as the ten-day of antibiotic regimen winds down. I finally recognize that I have been having pain when I eat, mostly when I swallow. This is a new finding. And I also recognize that the pain is increasing in frequency and severity. Not frequent and severe, but a definite upward trend.

So, as a star troubleshooter, I spend time chewing on one side of my mouth and then the other. Nope, chewing is not the problem. So it’s my throat. But it only hurts when I swallow sometimes. Sipping wine? No problem. Gulping water? Fail.  I further localize it to the right back side of my mouth, base of my tongue.

I bet you never thought about your tongue as a big muscle. When you eat like a pig and bite off alot, your tongue moves the food around in your mouth so you can grind and pulverize it enough so you don’t choke when you swallow.

I find myself eating daintier bites to avoid pain. I eat more slowly. I begin to prepare myself mentally for each meal. I pull out the calendar to try and figure out how long this has been going on. I can’t exactly pinpoint it, but it wasn’t an issue on vacation. So let’s say it started in mid-August. I get my antibiotics at the end of September. Twelve days later I call for a follow-up.

Making the appointment they tell me that I can see my doctor some time in the future, but I can see the resident in 3 days. I jump on it. I know that I will need some kind of additional diagnostics, so the sooner I get on the medical referral train, the better.

And, for the first time I admit to myself that this is something. I recognize the somethingness as I’m making my notes for my appointment. I mentally mark my dear friend Kris who was put off by her doctor more than once. Her advanced colon cancer took her away from us too soon. I’m thinking that I am NOT going to let them put me off. And, I realize that I am thinking that this might be, you know, uhm. Okay, deep breath and think it for real. Maybe it’s cancer.

Off to the Google. Is mouth cancer a thing? Yup. Oh, and that Beastie Boy guy had salivary gland cancer, and it killed him. Step away from the Google. Wait to see the doc.

I am now taking four Advil every 4 hours for the pain. I decide to go to the doc without pain numbness to help them diagnose me. I know that the resident will bring in the attending. She does. They see that it hurts. That the recent antibiotic course rules out an infection. They palpitate around my throat. They use the word mass. Order at CT scan. And tell me to make an appointment with the ENT as soon as the test is done.

Mass. That’s a cancer kind of word. I walk across the street and sit at one of the tables in front of the Whole Paycheck. I’m a little rattled, but get on the phone to get the scan scheduled. Turns out that it’s considered two tests, neck and head. So they need to find me two slots. Have to wait three weeks. Can call back to see if there are earlier openings. Make the appointment with ENT for the day after the scheduled scan.

I go back to the cancer site. I tell my spouse there is a mass. He knows but doesn’t say it.

I can’t take the Advil because of the scan. I can’t take enough Tylenol to kill the pain and maintain kidney health. Move up the chain to Tylenol-3. Have the scan. See the doc.

It’s a few weeks later and my mouth is really sore. Painful. I eat a little bit at a time. It’s too much work to eat. The exam is very painful. The doc is very apologetic.

And then he says that it’s cancer. And that he thinks I knew. And I did.

More flurry of appointments to verify what we know. But he’s confident that I’ll be cured. Phew.

I don’t know why I cry. It is just a little squall. Over while he left and came back to the room.

I don’t know why I cry. The doc was right. I did know it. I cry a little more in the car. Then I take a deep breath. I remind myself that I am not going to die. At least not right now.

I take another breath and start to prepare. Need to tell my husband. Need to tell the Big Guy. And likely Skype the Little Guy who goes to school in the Rockies.

I’m getting treatment now. Have a second round of menacing poisons that attack my fastest growing cells on Monday.

I read Gerson’s post again. He talks about cancer as a metaphor for our mortality. Maybe later I will know why I cried. For me, at least right now, it’s just stupid.

First Tattoo

big mean-ass dragon

My dad had tattoos. He served in the Navy, part of the Greatest Generation. He had an anchor on one bicep. A battleship on the other forearm. And above the battleship, a young woman with curly hair wearing a crackerjack hat with a few of his ports of call underneath her smile. We always said she was Mom.

My sibs got tattoos at different times. My one sib originally had a little unicorn with a rainbow and a kitty-cat with her little paw in the air. Not my style. When Dad died, she had an anchor tattooed on her ankle.

My other sib is a musician and had an eighth note with a rose tattooed on her chest. She got an anchor, too.

I always wanted a tattoo of a menacing dragon. One that I would wear over my back and shoulder with the tail just curling over the top of my arm. If I wore a tank top, you would see the tail and wonder what the whip was attached to.

But I never got the tattoo. The colors would fade, and my imagination had vibrant colors. Worse, as I aged, it would sag. And anyway, it’d probably hurt.

Yesterday I had my mouth tattooed so they can track the size of the tumor in there. In my head, it looks like a dragon. And it will kick evil’s ass.

Baaack (again)

I thought I might blog over on another platform, but it just seemed disconnected from my thinkings. I thought about starting a new blog, but I liked this old one. So, I thought that I would just write here, again.

I wanted to write again because I haven’t written from my own voice on my own things for a really long time.

I really enjoyed being the Doctor of Thinkology and just thinking about things. I stopped writing here when I started up a professional blog. I just couldn’t keep up two blogs. That other blog was a good blog. I liked the analysis and writing, and it helped me out professionally. But then I switched jobs and had a conflict with that blog. So, I pretty much stopped writing.

So, now, to catch you up, the the 16-year-old in this post is now 22.  And the 11-year-old here is now 19. I think I will rename them Big Guy and Little Guy. Which is not reflective of their sizes. Also, this sweet pup has left us but we have brought another into our home. Oh, and one more catch up thing. I got cancer. Guess that really explains why I’m back.

Reboot

Updated Nov 9, 2013:  never mind

After a two-year hiatus, I’m going to see how it goes on this other platform. Hoping to do some post-doc thinking. [see what I did there? I’m still clever]

Come join me and see how I do.

When Thinking Doesn’t Count

Ooogie Boogie from Nightmare Before Christmas

Charles Blow writes today in the New York Times about head versus “heart.”

This underscores the current fight for the soul of this country. It’s not just a tug of war between left and right. It’s a struggle between the mind and the heart, between evidence and emotions, between reason and anger, between what we know and what we believe.

This conflict was captured in a tit-for-tat between Obama and Rush Limbaugh. In an interview with CBS this week, Obama complained about the “vitriol” coming from the likes of Limbaugh: “I think the vast majority of Americans know that we’re trying hard, that I want what’s best for the country.”

Limbaugh shot back on Friday, “I and most Americans do not believe President Obama is trying to do what’s best for the country.”

And there it was. Obama’s language focused on what people “know,” or should know. He seems to find comfort in the empirical nature of knowledge. It’s logical. Limbaugh’s language focused on what he thinks people “believe.” Beliefs are a more complicated blend of facts, or lies, and faith. And, they can exist beyond the realm of the rational.

And this is the part where I get really scared.

You see, I am a thinking person. I will look at facts. I will look at data. I will follow the trail. If I am worried about the provisions in the health care bill, I will read them for myself. And, I will change my mind when I am wrong.

Here’s the scary part. There are many–and truly not all–people who are strongly against health care (really insurance) reform who are just making stuff up. These people are making stuff up all the time. They are in an alternative reality. Where birth certificates from a sovereign state are suspect and there is a great and evil communist-nazi conspiracy.

And the left, we are going with logic. And facts. And thoughtful arguments. If people only understood–the President seems to be saying–they would support.

They have the boogie man. Boogie man wins over thinking man.

Keep an eye on the elections. Thinking people need a new strategy.

Thinking The New Year

glass easily half full

I was lucky to click through to a good post by Stowe Boyd on resolving to be the best you. It’s called “Nature or Nurture In Social Networking” [not a compelling title to me], but what makes it important to my thinkings it that it reminds me that we make our own heaven or hell. [Even though he says that we don’t.]

In doing a good job of synthesizing recent research on happiness in social networks, Boyd also points up a few resolution/techniques that can help us (read ME) do something to make ourselves happier. [See this is the irony in him saying that our happiness is not within our own control and then giving some steps that ARE in our control. Still, it works for me.]

  • Resolve to surround yourself with people who are actively involved with activities and behaviors you want to do more of.
  • Avoid people who are involved with activities and behaviors you want to do less of.
  • When in contact with people who want to emulate you, be aware that you have this sort of impact on them. —from Stowe Boyd

I was thinking, is depression contagious? I now recognize that I have spent the last two years living with and loving people with depression. Can this be having an effect on my own natural optimism?

Optimists think that they can fix it. Depression isn’t “fixable” in a traditional pull-yourself-out-of-it kind of way. And when you love somebody, it doesn’t do you any good to resolve to avoid them because their negativity is contagious.

On the other hand, could my optimism help my social network feel more optimistic? I choose to think so–especially since I have no intention of removing the nodes with depression from my network.

Glass definitely half-full. Game on!

The People’s Choice

Aretha Franklin singing like a boss.

OMG! News flash!

Conservatives are WORRIED! Distraught, I tell you.

Perhaps even SHOCKED, that they disagree with Obama’s cabinet picks and/or his policies. And somehow, once they wake up, that the 66,882,230 people who voted for Obama are not going to be happy.

According to the WashPost

“It is disturbing,” said Roger Clegg, a conservative…”The transition team as described to me was made up of nothing but people on the far left. Though Obama is more moderate, that makes you wonder what kind of advice the president is given, and what range of choices he’ll be given when it comes time to make appointments.”

Oh no! Nothing but people that disagree with the current failed policies of the Bush administration.

Note to Mr. Clegg: Your side LOST!

A few months into the Bush presidency–you know the election when Bush lost the popular vote* and then came in running the place like he had a frickin’ mandate– I saw my friend David at the local bar and grill.

David: You know, I never, ever got the hatred and bile that people had for Bill Clinton.
Me: There was alot of hate and bile.
David: Yeah, there was. But now I get it. I really can’t stand the “W.” I now know how the other side feels.

Reminder to the other side–this is what it feels like.

Except that this new Prez-elect actually thinks it’s important to listen and acknowledge differences. That this new Prez-elect understands that he is a member of our national government, that was founded in 1776–that it did just not pop out of his head. And that this Prez-elect is the leader of a movement that has been embraced by the majority of the American voters.

Like in a democracy.

‘Nuff said.

*BTW–50,456,002 people voted for G.W. Bush in 2000. That’s more than a half-million fewer than voted for Al Gore. See more.