Don’t Be Mad With Science

Trinity College Library in Dublin. A spiral staircase to the books.

Cancer is an awful scourge that makes people we love suffer. The rat-bastard disease rips people we love out of our lives. Stupid cancer makes people into angels when we aren’t ready to let them go, when we should be with them. Nobody likes cancer. It makes people worried. And sad. And mad. And scared.

Charlatans and money grubbers who prey on the fears and hopes of people with cancer–and I’m including family and almost-family as having cancer because cancer is a “we” disease–those cons suck almost as much as cancer sucks. Maybe more.

Cancer is indiscriminate. It doesn’t select hosts based on age, gender, race, religion, income, social status or whether you prefer the Yankees or the Red Sox. The predators actually do focus on the victims. The saddest. The most fearful. Those who are desperate. Maybe they are worse than cancer. They have intention.

I read a NYT piece about drug companies that are selling their wares directly to sick people. The author of the article was triggered by the sunny promises of a better cancer through, in this case, immunotherapy. I get how gutted the surviving spouse felt by seeing the skewed promises of a therapy that might help a little. Or maybe not at all. And to the grieving family, I am so very sorry for their loss and the “cheery” reminder of their anguish via a TV commercial during a sporting event.

I am in riotous agreement that the direct to patient marketing of drugs is ugly. It sells us solutions that many of us do not have the ability to evaluate. And it interrupts the relationship with caregivers.

When I was diagnosed with cancer, people who knew me well, and some who knew me less well, would nod and smile and opine about my internet research learning all the ins and outs of the disease and the treatment. I couldn’t share the nod. Instead I shook my head.

Like my two weeks on the internet would make me know more than a board certified oncologist and otolaryngologist who were professors at the medical school? I dunno. Didn’t make sense to me. I made the decision that my medical team was as good as I could get, given the hand I was dealt.

I decided to trust the experts.

Now, if I thought they were bozos, I would not. But then why would they be my doctors? I live in a major city. I have choices–including five major cancer treatment centers. My guys were smart, compassionate and great communicators. They presented options. I asked a bunch of questions. The Spouse asked plenty. Even the Big Guy chimed in. I quickly made a choice of treatment that made sense. This was really hard because the cancer made no sense, making the sense-making itself inimical.  And dammit, Jim, I’m DocThink not Doctor of Medicine. I studied as best I could, and then selected their recommendation. I threw in with them.

For me, it turned out okay. For my friend K, it didn’t. For my friend T, it did. For my other K friend, we’re thinking it will. For my MIL, no. For my Dad, yes (it wasn’t C that took him). For M, yup. I’m sure that you can add your own set of initials to the tally.

But here’s my thing. Looking at the comments on the NYT post disparaging the blood-sucking, players-of-people’s-worst-fears-for-money drug companies, there is a significant thread of people hating ANY cancer treatment. Chemo = bad. Radiation = criminal. Surgery = butchery. Immunotherapy = mumbo jumbo.

But these therapies have worked for many of us. Either getting rid of the shitty cancer, or giving people time in months or years with their families. I am terrified that people will reject the expertise of people–doctors, nurses, scientists–who are trained and committed to curing or, if that’s not possible, ameliorating cancer.

My doc told me that he had three goals for my treatment. 1. Keeping me alive. 2. Ensuring the best quality of life. 3. Making me look as good as possible. In that order. He did all three. He presented me a novel treatment that would not have been in the internet results. But he had a robot and he wasn’t afraid to use it. And I believed in him, as he believed in me.

The science and the practitioners aren’t the bad guys. They’re not perfect. They’re the first responders, fighting the terrorism of cancer with us. Not against us. Let’s call out anyone who’s taking advantage of us, but let’s not put a single blanket of shame on the entire medical profession. We can trust science, and verify as well as we can. And may the odds be ever in your favor.

Women Have The Right To Vote

Voting is a right, written on the back of a strong woman

It’s only (as well as an excruciating) 92 days until the next big election. Early voting starts in Minnesota in half that time–on Friday, September 26th. There are still primaries in many states shaping up down-ballot races, including those critical local and state races that have a huge impact on people’s day to day.

At the risk of jumping in like Captain Obvious, it’s important to remember that women–you know a little bit more than half of the U.S. population–weren’t able to cast a vote in the U.S. until 1920.

So, for those 114,642,000 U.S. citizens of voting age who are women, per the Census, as you contemplate casting your ballot, contemplate what it took to gain your right to  vote.

Things You Maybe Didn’t Know About Women’s Suffrage

Worldwide, women weren’t always included in voters rolls.

  • Switzerland was the last Western republic to grant women’s suffrage in 1971. I guess their neutrality wasn’t all that neutral. Other late adopters of women’s rights to vote in Europe were Spain 1931, France 1944, Italy in 1946, and Greece in 1952.
  • Some countries were early to the table regarding women’s vote. Their idea was that people vote, and that women were people, ipso facto women voted. Crazy, no? Examples include Austria and Estonia and Poland. While these countries were not early democracies, at least when they let people vote, they included women.

Back to the U.S., there were pockets of women’s suffrage before the 19th Amendment.

  • New Jersey got it right. At first, anyway. The New Jersey constitution of 1776 enfranchised all adult inhabitants who were property owners. Laws from 1790 and 1797 referred to voters as “he or she,” and women regularly voted. But in 1807 they passed a law that took that right away from women. Why??!?
  • In December of 1869, the Wyoming Territory approved the first law in United States explicitly granting women the right to vote. Yay!
  • Another western state, Colorado, did it in 1893. This was super awesome because the change came via referendum. This means that the men in Colorado were excellent early allies and voted for their sisters, mothers, wives and friends to join them in political decision-making. The referendum passed with 55% of the vote. Double yay!!

Wanted: Constitutional Amendment for all U.S. Citizens (where ALL includes women)

  • The push for universal women’s suffrage had it’s birth in 1848 at the Seneca Falls Convention in upstate New York. Activists–primarily women–began a seven decades effort to secure the right to vote.
  • The 19th Amendment was first introduced in Congress in 1878 and the language was modeled after the 15th Amendment. It was pretty simple.

The right of citizens of the United States to vote shall not be denied or abridged by the United States or by any State on account of sex.

  • Hard to think that it was controversial, right? You’d be incorrect there. It took forty-one years to get Congress to approve the amendment and send it to the states for ratification.
  •  It was ratified by the requisite number of states one year later, with Tennessee’s ratification being the final vote needed to amend the Constitution and provide women a voice in government.
  • Here’s a scary one. Florida, South Carolina, Georgia, Louisiana and North Carolina did not ratify the 19th Amendment until 1969-1971. Mississippi was the laggard, finally voting “Yes” in 1984. You read that right. Women could still vote, mind you. They just didn’t approve.

The Struggle Was (and is) Real

  • Suffragists adopted a “feminine” dress to appear less threatening. They frequently wore white to symbolize their purity. No reason to scare people off. I guess.
  • Women have been helping each other all along the way. Susan B. Anthony would babysit Elizabeth Cady Stanton’s children while Stanton wrote suffrage speeches and petitions for Anthony. Sisterhood teamwork!
  • Mom’s rule. The story goes that a Tennessee legislator was pressured by his mom to change his No vote to Yes. His was the last vote needed. She told him to do the right thing. That’s lobbying from the heart. Everyone, go thank your mother, just on general principle.
  • The Census estimates there’s 302,800 women in the U.S. who were born before the 19th Amendment was ratified. Bless them, one and all!
  •  Many African American women were active in the woman suffrage movement–even though they were not always welcomed by some white activists. Look up Ida B. Wells. Let me help you. Her work on women’s suffrage, and her brave anti-lynching activism, made her a hero to social justice. And white women need to take heed of sisters of color, they are there fighting the good fight on many fronts!

Folks, and especially women, who think that voting isn’t important, just think about the women and men who helped ensure the right to vote. It was important then, and it’s still important now.

Make sure you register to vote. Then make sure your voice is heard. Cast your ballot.

A Dish of Tomatoes

Yellow and red+green heirloom tomatoes.

They were special tomatoes. Heirloom, as if they were passed down in the family. But it is actually an excellent ploy to extract more dollars per pound for tomatoes that look much less than perfect–in color, shape and demeanor. They are supposed to taste extra good, but in that way they are just like other tomatoes. Sometimes they taste good. Sometimes, not so much.

These were nicely ripe. They were heavy and felt fluid-filled. The tomato would give to pressure from a finger, but return to shape almost immediately. Holding it, it was heavy. Bringing it to the nose, it smelled of itself.

It put up some resistance when I put my knife to it’s skin. It swelled slightly under my hand and then ceded with almost a sigh. Gently sawing the surface, it soon gave way beneath the flesh to a wet, almost gelatin middle, flecked with seeds. After cutting in half, I removed the top of the core then went to work, sliding the knife again and again, making irregular cuts for the salad. The cutting board was filling with juice that I tried to capture by scooping the pieces onto the knife and dropping into the bowl.

There was a big yellow tomato and a red tomato with green. I topped them with swirls of extra virgin olive oil, a scant tablespoon of sherry vinegar, a few turns from the pepper mill and coarse salt. I stirred and let it sit on the table to let the juices ooze out. The better to dip the crusty bread in and get every last drop.

Little Action in Action Park

Waterfall Action [!?] Park, Rodanthe, OBX, NC.

There is loneliness in abandonment. Like a baby’s sock spied on the sidewalk. You know the baby kicked it off, and the parent is later annoyed by an unpaired sock. Yet, you see a single sock alone on the concrete, maybe it has a ruffle and little multi-colored hearts, and your heart breaks. Just a little.

Combing though boxes at a yard sale–and seriously what the hell are we doing going through other folks’ castoffs??–there’s that beat up puzzle box. It’s likely missing two or three pieces. You find the beat up box next to an old Barbie with a fright wig style hairdo. She’s always naked. And her twist and turn waist is seriously wrong.  Pawing through, there may be a few stacking blocks, the ones with the ABCs, rattling around. I guess someone just couldn’t throw it out. So you are stuck with their melancholy just because you were hoping for… Oh, nevermind. Don’t go to yard sales.

Even a car up on blocks in a front yard, once you push past the eyesoreness, is mournful. Especially when you see it in front of a short boxy house with a mostly sunken roof and peeling siding framed by what had been a screened in porch. Today, though, the door flaps in the wind and makes a loud clapping sound when it tries to fit in its frame. The porch is minus much of the screen. You can see the broken couch that would have been hidden on the porch. Nobody is there. But the couch, a pile of mail overflowing the mailbox and an old green hose snaking from the side of the house toward the rusting car makes it clear that was not always true.

Driving on NC-12 reveals the remains of what had been the Waterfall Action Park in Rodanthe. First, what an odd name. What were they trying to sell? Anyway, it was built in 1980 but had the look of the worst of a 60’s amusement park. Passing by, it looks like it was abandoned 30 years ago. The grass is growing through cracks in the concrete. The chutes and flumes of what must have been the water action slides are both sun bleached and misshapen. There is almost no color left. Everything is askance and a silvery grey-white, with maybe a darker gray that was once blue.

The park was big and spanned both sides of the highway. There was a putt-putt golf course and two or three go-kart courses. All that is left is a bunch of old tires and the curve of the concrete that the absent carts dragged across. Seeing this wretched wreck over the past few years makes me mourn a past that I never knew.

This wreckage, despite its full ruin, is all of four years old. After a one-year decline, due to the founder’s death, Hurricane Sandy ripped through. In less than two years, this “action park” became an inaction eyesore.

Like that. The story isn’t ancient history, although the site looks it. It’s more like the missing sock from a baby’s foot. Immediate. Transient. And sad.

Post #214

a guy and a dog walking along a dock in Ocracoke.

I walked the length of our beach road at 7 a.m. Sweat was dripping from the tip of my nose and from the bottom of my chin. Literally dripping. I was walking slowly. This was before coffee.

I finished the milk one day too soon. I thought about going half-rations in my coffee this morning, then I threw all caution to the wind. Black coffee tomorrow morning.

I was lulled to sleep by the ocean and was shocked awake by a silent wave rushing over my legs and quick chilling my torso. Like the wine chilling vat at Whole Foods. But more quicker. This was not an issue. I fell back asleep.

I watched fluffy clouds chug across the sky. One looked like a cartoon alligator splayed on his back, laughing at an unheard joke. Another looked like a train with three cars, white cloud smoke puffing out of its stack.

I heard someone say that there are bumper stickers with a picture of okra and a coke bottle. I wish someone had told me that before I embarrassed myself by mispronouncing Ocracoke. I convoluted those letters every which way. Many times. Never again. A picture in my head is worth a thousand words.

I decided that there were too many male voices on the streaming “radio” stations. So I sought out Icona Pop with Charli XCX. I don’t care. I love it!

I stood in front of the refrigerated aisle at the Food Lion contemplating the choices for the trip’s final six-pack. I went in thinking of the known crisp and slightly fruity Stella and walked out with an unknown Slow Ride session IPA.

I learned that the unknown could be a very good choice.

I found out that monkfish is on the list of the thirteen most ugly animals. First, the list has thirteen? Not ten? Not fifteen? Did somebody get bored? Second, we are having it for dinner.

I was right to try a news diet. I knew I was right when I broke the diet and saw some of today’s news.

I spoke to both boyz today. One is 33o miles away and one is 1,901 miles away. They both needed something. That oddly made me happy. Not redundant, yet.

When I spoke on the phone with the Big Guy, I covered my mouth. I had just eaten some garlicky gazpacho. I apologized for the smell. He laughed. He said he couldn’t smell it. I laughed. I said it was because he had a cold. He said, “no, it’s actually pneumonia.” Uhm, the good news? He stopped smoking. For now. And promised to drink plenty of liquids.

I have a sunburn on my legs. It is the accumulated tan of six gloriously sunny days. I should have been more generous with the leg sunscreen, but there was such a good base. It is the glowing coal type of sunburn–it doesn’t really hurt, but it is hot. I bet it’s just old people skin by morning. I’ll drink plenty of liquids, too. Can’t hurt.

I decided against trying to string this together any better. See it as you will. And, thanks, as always, Loyal Reader, for your indulgence.

 

B is for Book

Reading a real book. This one is good so far. It's called H is for Hawk by Helen Macdonald. I'm on page 182.

All good writers are readers. And I have not been doing enough reading.

Oh sure, I read a lot, but find my eyes drawn to too much cotton candy–fluffy and sweet without much substance.

I brought a pile of books to read at the beach. My beach reading is usually geared toward memoir–the beautiful and yet unsatisfying West With the Night; biography–I read Chernow’s Alexander Hamilton on Nantucket a decade before it was a play; and the odd–yes, one summer I read the National Commission on Terrorist Attacks’ 9/11 Commission Report. My preferred fiction runs from Harry Potter, to Roddy Doyle to the aching Year of Wonders: A Novel of the Plague which had one of the saddest passages I have ever read. I am not a big reader of procedurals,  or romance–just not my style. But I do like me some magical realism.

Yet my reading has been on screen. The day-by-day play-by-play of this whack news year. From “did he really just say that?” to “what will they do next?” to an almost numbing accounting of police killing and killings to attacks on innocents all over the world, I just click and read and click and read. I get distracted occasionally by fights between pop stars and the you-won’t-believe whatevers. And no, I did not get all wound up about nude paddle boarders, but I am sorry to have the “knowledge” that some people did.

So, I am going on a news diet for the rest of my holiday. No more up to the minute feeds. I won’t click on the stories while I am looking at your vacation pics and family time. Seriously, I’m going on a diet, not a hunger strike.

I will now close the browser, lower the laptop lid and open my paper book. And turn the pages until I finish it. And then repeat with another book. And, I hope, another. I want to be a better writer, so I better be a better reader.

Poseidon In The House

The waves are crashing on the beach. There are some big fluffy clouds. And some sandy feet and sandy sandals in the foreground. It's sunny, too.

The gods of the sea asserted themselves today. It’s not like they were absent. They are always a part of the ocean. It’s just that today they made themselves known.

For the past few days, the ocean has met the shore with gentle rollers licking the sand. The water was a gray blue at the edge and striped green blue and then medium blue. The waves broke late, and without fanfare. It was subdued, but, the boss is still the boss.

Today, the breeze was stiff and from the north. It wasn’t windy. Hats were safe on heads, but blankets and the bodies on them were quickly covered with a light layer of sand. If there was no body on a towel, it would fold upon itself. Only once and then it would be heavy enough to stay put.

The soundtrack volume went from 3 to 7 with the percussive waves falling farther and with more frequency. Where the waves were only breaking at the shore, today, they were successive lines of crashing hills as far as you could see. Sometimes, a wave cresting north-south would meet up with a wave cresting south-north. The resulting criss crossing swirled and left a creamy foam reminiscent of  a well-poured Guinness.

On the waves, out halfway to the horizon, I saw a five foot swell speeding to the coastline. As I squinted I saw the outline of Poseidon riding the crest that was actually six white seahorses pulling his giant shell sleigh. There were dolphins, or were those mermaids(?), breaching the water in front of him and along the sides as his emissaries. The clamshell turned into a pair of majestic sea turtles–siblings for sure and as old as the sea–with the god’s feet planted firmly in the center of their shells.

The trident carried by Poseidon shone bright in the sun.  The glint from the sun blinded me for a minute. I had to close my eyes. When I opened them, the billowing white wave had dissipated and I lost the god. But I know he was there.

 

Taking Stock

Guac and salsa and chips with a beer on the deck. Looking at the ocean. But you can't see the ocean in this pic.

We asked our friend, Chef, what she brings on vacation. If you rent a beach house—and are not in the demographic worried about having an appropriately sized table for beer pong—this is an important question.

If you’re tooling around Ireland, it’s about pubs along the way. If you’re vacationing in Italy your food questions are local wines and food, unless you rent a villa. Then you are renting a kitchen staff. My dream is to charm my way into nona’s kitchen and leave with both an appreciation and mastery of her techniques.

At the beach house, you find a blank canvas with unknown brushes, paints and palette. Actually, the paints are known. They are BYO.

The kitchen is supply free. There may be a filled salt and pepper shaker, and the salt may be sticking together, otherwise it’s empty cupboards. Last time I moved into a house and didn’t have a supply of mustards and vinegars, spices and sugars, and oil, flour and maple syrup was—let me think. Yup. It was the first time I moved as an adult. The second time, I packed up and moved my accumulated larder.

I’ve packed up the oregano and sage, rosemary and thyme, the cumin and chili powder, the cinnamon, ginger and nutmeg, and the 3 vinegars and two oils each move until I moved into this house a generation ago.

My current staples include the above plus capers, roasted red peppers, sun dried tomatoes, anchovies and anchovy paste, four or five different types of nuts, golden and Thompson raisins, dried cranberries, cans and cans of beans of various colors and sizes, artichokes, 4 more types of vinegars, additional grades of olive oil, yellow and brown and rustic country and Dijon mustards, horseradish, fish sauce, sriracha and Tabasco, and a hearty and hefty addition of jarred spices. There’s jasmine rice, sushi rice, abririo rice and rice rice. There is white flour, wheat flour, coconut flour and corn meal—both coarse and fine. There’s lentils—black and green; quinoa—regular and tricolored; some farro; and an I interesting grain mixture that I like. I’m sure this list, as long as it is, is very incomplete.

Even with cupboards filled, there’s frequently something I need. And, many other days, nothing to cook.

Rolling into the beach house is all about minimalist stocking for minimalist cooking. The eating out options are sparse, and somewhat gross, so eating in is big.

While some beach cooks are into disposable stocking—that is to throw out barely used jars of ketchup, mayo, pickles, salad dressing, and the specialty gourmet splurge-on-account-of, well, vacation—I just can’t. And The Spouse would secretly pack it all to bring back home where I will throw out the tiny jars of spoilt goods when he’s sleeping. I like that even less.

Bring more, you advise. I just can’t pack up my kitchen. See above re: the sisterhood of the traveling pantry. Not doing it. And I’d forget something and have to buy it and then end up with two at home. Or three. I’m still at a loss as to why I had 3 jars of paprika and 3 of that disgusting dried lemon peel at home.

So for my week of vaycay meals I settle on olive oil, red wine vinegar, Dijon, fresh cracked pepper, sea salt, garlic, onions and a few sprigs of fresh thyme from the produce section. Add some lemon and lime zest—those fruits are critical for drinks!—and I’m stocked.

So when I asked Chef what she brings, I was surprised to hear her say, a knife. A tool! But she is damn right. The knives—and most of the culinary tools in the rental
kitchen—are usually both plentiful and dull. And mostly serrated. Who has six serrated to one regular knife? Heathens!

Using the rental kitchen “sharps,” I suffer though trying to chop garlic fine. My knife sides off the side of the onion. Another knife pummels verses slices the tomato. Oh, for a good knife!

But the wine is good. The vegetables are fresh. The fish market—when you find the one with the local catch—is perfect. And the creative challenge of a meal for foodies with few staples is well worth the fun. Especially because the wine is good. Seriously, I’m on vacation, but not on a vacation from good food. And did I mention the wine? I did, didn’t I? It’s good. It’s all good.

You’re Not Boss Over Me

Bossed up. Like Diana. Wonder Woman. From an Esty.com ad

The child was prancing at the edge of the waves. I don’t know if she was teasing the ocean, or if the ocean was tricking her.

She was backing away from the water, and I could see the bottom of her swimsuit had white stars on American flag blue. Reminded me of Wonder Woman.

I readjusted my sun hat and pulled the long brim up a bit so I could see better. The suit had a cutaway and the top was red with yellow trim. Was this really a Wonder Woman suit? The girl turned toward me and I saw the definite gold “belt.” I so wanted that suit. Now. In a grown-up size.

I always forget how important Wonder Woman is to me. When Warner Brothers added Wonder Woman to it’s super hero lineup and released the trailer for her film, I watched it about fifteen times that first weekend. Thirty if you count all the times I skipped ahead to see her break a rifle in half, over her back, and deflect heavy artillery shells with her shield. But the best was when the guy said, “I can’t let you do this.” She looked at him somewhat blankly and said, “What I do is not up to you.”

“What I do is not up to you.” I love this. She makes her own calls. She doesn’t care about the guy’s chivalry. She doesn’t thank him for his concern. It’s foreign to her. It does not compute.

She doesn’t apologize for her strength. She protects other super heroes–like both Batman and Superman as they blathered on about their relationship. She is a fully formed person–albeit a badass person.

The girl was about seven. My eyes closely followed her every frolic. She kicked her leg out at the incoming wave. I looked. She waved her little plastic shovel above her head. It was duly noted. She pushed her wet locks away from her face, showering herself with sand. I saw that, too.

I watched this little girl playing next to the big bad ocean. She had no fear. She was alert, but not leery. She displayed her confidence. She didn’t need someone to protect her. She was fine. Wonder Woman in the making. I hope she always remembers that she’s a warrior princess. Oh, and where she parked that invisible plane. It’s impossible to see.

Sniff Testing 1-2-3

Dog, sniffing on the beach. He definitely smells something.

What does salt smell like? It has a taste, but to the nose there’s not much. So the smell of salt in the ocean must not be salt. It tastes like salt, when you lick your lips. But it must not be the salt you are smelling. It’s the ocean. Since taste and smell work together it seems like you smell the salt.

Walking along the water on a hot summer day, there’s more to smell than the ocean. Some people bring elaborate meals. Frankly any beach meal is elaborate if you don’t eat it out of a bag. The smell isn’t specific, other than it was food. It had some kinds of spices or herbs that wafted to the shoreline. Maybe it was boxes of pizza. That seems labored. The beer was mostly in cozies. There was no smell of hops.

From the family of four little girls in matching pink swimsuits and very pretty bows on their little heads and accompanied by a little boy who did not share the pink print on his swim trunks, came the unmistakable smell of summer. It was the scent of Coppertone.

Coppertone was the only suntan lotion when I was a kid. It wasn’t called sunscreen in those days. It also didn’t screen the sun. But we were slathered with it when we got to the beach, before we ran into the water. It smells of sand and sweat and seaweed and my mother ensuring that our fat little legs were covered.

Coppertone makes real sun protection now. There are a bunch of different formulas. Sprays. Lotions. Sport. Waterproof. A little UV protection. A lot of UV and other rays protection.

But the kids’ Coppertone still smells the same. And it still feels the same. Like a ham sandwich on white bread with a little bit of sand and an Orange Crush. And the sound of gulls who screech greedily at those sandwiches and kids who scream like they’re on a ride at the amusement park but are just expressing shock at the cold water. And an afternoon in the sun, with the family, having a day at the beach.